Once again, thank you does not seem to be enough but all we can say is thank you! Molly is now stable again. All of the extensive tests came back clear. The Neurologists and her Docs believe the episodes where a side effect of all the medications she is currently on. Confirmed to not be a brain bleed, tumor or something scary like that by the EEG and CT scans. They have made some adjustments to her meds and she is resting comfortably now. All this has happened while Molly’s counts have been rising which means she is engrafting. Like they told us, she is getting much sicker with nausea and general joint pain. It is hard to see our little girl in obvious pain but we can take small solace in the fact that she will soon get better. Plus today we got some fantastic news that her latest chimerism shows her at 100% donor 2! Way to go Mom’s cells! Molly has still been spending mostly all of her time in bed. Other than the occasional time that she wants to spend on Mom & Dad’s laps getting some much needed snuggles. She has not stood up on her own or said more than 2-3 words in about 2 weeks now. At this point all she really says is “gimme water” or “ouch”. Rehab will be a big challenge once she is feeling better. The other kids are enjoying the fantastic summer weather but are really missing their little sister Molly a lot. They spend a lot of time in “the fish bowl” which is the waiting area, while Mom and I trade off (and try to talk for a little bit). These have been really difficult times for all of us but I think we can finally see the other side and hopefully before too long we will see our rambunctious little big girl back again.
